24小时内的人生反转:新生命的降临与多发性硬化症的确诊 New York Times Podcasts 2026-09-02

播客引言与开场

安娜·马丁: 大家好,我是安娜·马丁(Anna Martin)。在进入今天的对话之前,我想先对正在收听节目的《纽约时报》(The New York Times)订阅用户说一声感谢。你们的支持为这档节目注入了动力,也支持着时报出品的所有故事与新闻报道。现在,我想对那些尚未订阅的朋友们说几句,我有一个令人兴奋的消息要分享。现在,当你首次下载《纽约时报》App 时,首月可免费使用。这意味着你可以免费畅享 30 天的高品质新闻报道,其中包含《Modern Love》(现代爱情)自开播以来的所有往期节目,完全免费,无需绑定信用卡。立即下载《纽约时报》App 开启体验吧。

Original English

Anna Martin: Hey everyone, it's Anna. Okay, before we get into today's conversation, I want to talk to the New York Times subscribers who are listening right now and I want to say thank you. Your support powers the show, empowers all the other storytelling and journalism coming out of the Times. Now, I want to talk to the people who are not subscribers yet. I have something exciting for you. Now, when you download the New York Times app for the first time, your first month in the app is free. That's 30 days of access to our journalism, which includes every Modern Love episode ever made. Totally free. No credit card required. Download the New York Times app now to get started.

安娜·马丁: 爱,此时此刻;坠入爱河。我爱;爱比一切都更强大。为了爱的名义;我爱你胜过世间万物;爱。

Original English

Anna Martin: Love [music] now and fall in love. I love love stronger than anything. For the love of love. And I love you more than anything. Love.

安娜·马丁: 这里是《纽约时报》出品的《Modern Love》,我是主持人安娜·马丁。生活中总会有这样一些时刻,某些重大变故毫无征兆地突然降临。你可能正站在杂货店里挑土豆,或者正在客厅里用吸尘器打扫卫生,突然间收到一条短信或一通电话,整个世界瞬间天翻地覆。你可能依然站在杂货店里,吸尘器可能依然握在你的手中,但生活在这一刻被生生地割裂为“之前”与“之后”,并且从此永远改变。

今天做客我们节目的嘉宾是布莱克·马丁(Blake Martin)。他是一位心理学家(Psychologist),最近为《Modern Love》专栏撰写了一篇文章。布莱克在短短 24 小时之内,接连经历了两次这样的人生剧变时刻。他脑海中原本关于未来人生模样的所有构想与故事,在极短的时间内被彻底改写。布莱克·马丁,欢迎来到《Modern Love》。

Original English

Anna Martin: From the New York Times, I'm Anna Martin. This is Modern Love. Look, there are moments in life where something big happens and it comes out of nowhere. You're just like at the grocery store looking at potatoes or vacuuming your living room and then you get a text or a call or whatever and suddenly everything changes. And you might still be at the grocery store, the vacuum might still be in your hand, but suddenly life divides into before and after. [music] And it stays that way forever. My guest today is Blake Martin. He's a psychologist and he recently wrote a modern love essay. Blake had that moment happen twice within 24 hours. And the story he'd been telling himself about what his future was going to look like got rewritten really fast. [music] Blake Martin, welcome to Modern Love.

布莱克·马丁: 谢谢你,很高兴能来到这里。

Original English

Blake Martin: Thank you. It's great to be here.

安娜·马丁: 我应该先澄清一下,布莱克·马丁,我们俩没有任何亲属关系。对吧?你可以证实这一点。

Original English

Anna Martin: I should say Blake Martin, we are not related. Correct. You can confirm that.

布莱克·马丁: 据我所知是没有的。我虽然还没去查过 ancestry.com 家谱网,但据我所知,确实没有亲戚关系。

Original English

Blake Martin: Not to my knowledge. I haven't been on ancestry.com, but uh not to my knowledge. No.

两年的备孕与奇迹的两道杠

安娜·马丁: 布莱克,你最近写了一篇《Modern Love》文章,讲述了你在 24 小时之内接连收到了两条彻底改变人生的消息。第一条是得知你的妻子怀孕了。你能跟我讲讲那个故事吗?

Original English

Anna Martin: Blake, you recently wrote a modern love essay about how you got two life-changing pieces of news within the span of 24 hours. The first was finding out that your wife was pregnant. Can you tell me that story?

布莱克·马丁: 当然可以。就像许多年轻夫妇一样,我们一开始也想当然地以为,只要我们开始尝试备孕,很快就会怀上。这是我们脑海中一直预设的剧本。当时我还在读研究生,所以我们起初并不是特别着急要孩子,毕竟谁也不想在仅靠微薄的博士津贴(PhD stipend)度日的时候抚养一个幼小的孩子。

Original English

Blake Martin: Sure, absolutely. We assumed, as many couples do, that once we started trying, we would get pregnant pretty quickly. That was the narrative we had in our heads. Uh I was in graduate school at the time and so uh we weren't in a huge rush to have kids because we didn't want to have a young kid while I was still existing on a PhD stipend.

安娜·马丁: 这完全合情合理。

Original English

Anna Martin: Makes sense.

布莱克·马丁: 但是当我们正式开始尝试备孕后,却什么动静也没有。起初只是一些轻微的疑惑,随着时间推移,这种疑惑逐渐演变成了越来越深的担忧。到了大约一年左右的时候,我们去看了专门治疗不孕不育(Infertility)的专科医生。

Original English

Blake Martin: But then as uh we started trying, nothing was happening. And what started as just kind of mild questioning over time grew to more and more concern to the point where probably about a year in we went and saw a specialist who dealt with infertility.

布莱克·马丁: 我们开始尝试各种各样的方法,看看是否有效果。大部分方法干预程度相对较低,费用也不是特别昂贵。

Original English

Blake Martin: We started kind of multiple different things to try and see if it would work. Uh most of them were relatively low intervention, not that expensive.

布莱克·马丁: 但当我们尝试了将近两年的时候,依然没有任何效果。于是,我们心里基本上已经放弃了自然怀孕的希望。摆在我们面前的选择是试管婴儿(IVF),大家都知道这项技术帮助了无数家庭。虽然当时我们并没有足够的积蓄来负担这笔费用,但我们还是下定决心想办法去凑钱。

就在备孕接近两年的时候,我正在进行一次远程心理咨询门诊。那是在疫情期间,我在我们一居室公寓临时改造成办公室的卧室里做线上治疗。我的妻子奥黛丽(Audrey)叫我过去,说:“我想给你看样东西。”她把我叫进了我们一居室公寓的卫生间。在我的记忆中,验孕棒就静静地放在洗手台上,上面赫然显现出那美丽的两道蓝杠。要知道,在经历了一次又一次“未怀孕、未怀孕、未怀孕”的失望检测之后,突然看到那两道杠,那种震撼是难以言表的。

Original English

Blake Martin: But then when we had nearly hit the the 2-year mark, still nothing was working. And so [sighs] we had kind of given up the idea that we were going to get pregnant, at least not naturally. And the option in front of us uh was IVF, which you know has helped a lot of people. We didn't really have the money for it, but we were going to figure it out. And then after almost 2 years, I was in a tellahalth session. I was doing therapy in the middle of CO in our makeshift bedroom office. And Audrey called me over, my wife, and said, "I have something I want to show you." and she called me into the the the bathroom of our one-bedroom apartment. And as best I can remember, the pregnancy test was just sitting there on the counter and it was just those two beautiful blue lines. You know, after having test after test of not being pregnant, not being pregnant, not being pregnant, uh to see those two lines was was pretty startling.

布莱克·马丁: 紧接着,我们就站在卫生间里紧紧相拥。

Original English

Blake Martin: And then uh we just hugged there in the bathroom and

布莱克·马丁: 流下了眼泪,那是喜极而泣的泪水。

Original English

Blake Martin: there were some tears, uh happy tears

布莱克·马丁: 我们尽情庆祝,然后脑海中立刻开始憧憬起那个曾被认为对我们永远关上大门的未来。

Original English

Blake Martin: and celebrated. And then of course began imagining this future that felt like it had been foreclosed to us for a long time.

安娜·马丁: 那个拥抱里饱含了太多情感——两年的苦苦尝试、接踵而至的失望,而现在终于迎来了希望,开始期待这个小生命的到来。你们后来还做了什么来庆祝吗?

Original English

Anna Martin: I mean that hug there's so much in that hug. Two years of trying disappointment now you know hope looking forward to this baby. What else did you do to celebrate?

布莱克·马丁: 当然,我们体验了给双方家人制造惊喜的巨大快乐。家人一直陪伴着我们走过这段想组建家庭却无法如愿的艰难历程。所以能够向他们公布这个好消息,拿出验孕棒一起庆祝,外出享用大餐。这些事情我们后来都做了,但在最开始的那几个小时里,这个秘密就像是我们揣在口袋里的一枚闪闪发光的硬币,只有我们两个人知晓。那种感觉彻底改变了一切,即使外界对此还一无所知。

Original English

Blake Martin: Well of course we had a lot of fun surprising our families right who had been along with us on this journey of wanting to start a family but not being able to. And so being able to, you know, share the news, pull out the pregnancy test to celebrate, go out to dinner. Um, we we did all of that eventually, but at the beginning it was kind of just like this this shiny coin we had in our pockets that only we knew about. And um that changed everything uh even if no one else knew yet.

安娜·马丁: 看到阳性验孕棒的那一刻,你脑海中描绘的未来图景是什么样的?

Original English

Anna Martin: You see this positive pregnancy test. What was the picture you had in your head about what the future would look like?

布莱克·马丁: 是啊。那种感觉就像是一扇原本对我们紧紧关闭的大门终于敞开了。

Original English

Blake Martin: Yeah. Um, it felt like a door that had been closed to us was opening.

布莱克·马丁: 我们甚至可以取消原本预约的试管婴儿门诊,把那笔钱改用来买尿布了。感觉在某种程度上,我们经历过的极其艰难、痛苦的一章终于翻篇了。因此,内心涌现出极大的释然。

Original English

Blake Martin: Even cancelling the IVF appointment, allocating those funds to diapers, right? It felt like in some ways this very difficult, hard thing that we had dealt with, that chapter was now over. And so, I think there's a lot of relief.

安娜·马丁: 我很好奇,你在更年轻的时候,是不是那种会幻想未来和孩子一起做什么事情的人?你会不会想:“啊,我等不及要带他们去钓鱼或者做点什么了”?

Original English

Anna Martin: M I wonder if you were the kind of uh younger younger person who would think about stuff they'd like to do with their future kid. Was this something that you did like, "Oh, I can't wait to take them fishing or something like this."

布莱克·马丁: 是的,我确实经常这么想。我非常喜欢户外活动。所以脑海中浮现的都是父子第一次去露营的场景,一起烤棉花糖夹心饼干(S'mores),一起睡在帐篷里。我觉得都是那些我本来就热爱但原本看似寻常的事情,而最让人兴奋的,莫过于能够把这些经历分享给自己的孩子。

Original English

Blake Martin: Yes. Uh I did think about that. I like to be outdoors. So the idea of like the first father child camping trip, right? Making s'mores, sleeping in a tent. I think it was all the things that I already loved that felt ordinary and the thing that felt exciting about it was getting to share that.

安娜·马丁: 那奥黛丽呢?她有没有跟你分享过她最期待和未来的孩子一起做什么?

Original English

Anna Martin: What about Audrey? Did she share with you what she was excited to do with this future child?

布莱克·马丁: 有的。奥黛丽特别喜欢看电影。

Original English

Blake Martin: Yes. Audrey loves movies.

安娜·马丁: 酷爱电影。

Original English

Anna Martin: Loves movies.

布莱克·马丁: 对她来说,就是“我等不及要带我的孩子去电影院,给他们买最大桶的爆米花……”

Original English

Blake Martin: And so for her it was I can't wait to like take my kid to the movie theater and get them the biggest bucket of popcorn

安娜·马丁: 哈哈,像极了我妈妈。

Original English

Anna Martin: I'm killing my mom. [laughter]

布莱克·马丁: 没错,然后一起享受观影时光。所以本质上,就是我们如何把这个小生命融入我们所热爱的一切当中。

Original English

Blake Martin: Exactly. And enjoy that together. So again, it's how do we incorporate these young people into the things that we love.

车里的通知与晴天霹雳

安娜·马丁: 好,你迎来了这个不可思议的、改变人生的天大好消息。

Original English

Anna Martin: Okay. So you get this incredible news, this life-changing, incredible news.

布莱克·马丁: 是的。

Original English

Blake Martin: Yeah.

安娜·马丁: 请带我们回到你收到另一条消息的时刻。

Original English

Anna Martin: Bring me into the other piece of news you got.

布莱克·马丁: 好。怀孕的消息是在一个周四的晚上得知的。到了第二天,也就是周五,我去上班。我当时在医院工作,正处于博士学位的最后一年。周五下班后,我去一家披萨店取晚餐,准备回家和奥黛丽一起吃披萨庆祝。

Original English

Blake Martin: Yeah. So um that was a Thursday evening and then the next day uh Friday, you know, I went to work. I was working at the hospital at the time. I was in the last year of my PhD. I went to pick up dinner at a pizza place, right, to kind of celebrate this this news, right, with Audrey back at the apartment.

安娜·马丁: 我也最喜欢吃披萨庆祝了。

Original English

Anna Martin: listen, I love a pizza celebration.

布莱克·马丁: 没错,周五晚上的披萨。当时我就在商业街露天停车场的车里等待。奥黛丽在公寓里,披萨正在烤箱里烤着。就在这时,我的手机震动了一下,屏幕上跳出一条电子病历系统(MyChart)的通知,提示有新的化验结果出来。

Original English

Blake Martin: That's right. That's right. A Friday night pizza. And I'm there in the parking lot of the strip mall. Audrey's back at the apartment. The pizza is in the oven. And my phone buzzes and there's a notification from MyChart saying that a lab result has been released.

安娜·马丁: 好。

Original English

Anna Martin: Okay,

布莱克·马丁: 那一刻我点开报告,看到——虽然我记不清确切的措辞了,但大概写着:脱髓鞘疾病诊断指标(Demyelinating Disease Diagnostic Panel)阳性,符合多发性硬化症(Multiple Sclerosis, 简称 MS)的诊断标准。

Original English

Blake Martin: that's when I open it and I see and I don't remember the wording exactly, but it was something like diagnostic panel and demyelinating disease and positive for multiple sclerosis.

布莱克·马丁: 可想而知,我的心跳瞬间开始疯狂加速。我的大脑飞速运转,试图理清所有线索:“等等,这到底意味着什么?是不是搞错了?我接下来该怎么办?”

Original English

Blake Martin: I can imagine my heart probably started racing. Um and my mind started spinning trying to tease out, okay, what are all the different possibilities here? Could this be an error? What do I do?

安娜·马丁: 整个人处于一种无法置信的悬空状态。

Original English

Anna Martin: And kind of in a suspended state of disbelief.

布莱克·马丁: 确实如此。与此同时,我必须被迫面对眼前的事实:我已经拿到了这个确诊结果,我必须想清楚该如何应对。

Original English

Blake Martin: Sure. while also reckoning that I now have this information. I have to figure out what am I going to do with it. Um, and

最初的身体异常与就医经历

布莱克·马丁: 几个月前,有一次我去跑步。跑到大概第三英里的时候,我突然感觉双脚发冷。我低头看了看脚,以为是不是踩到了水坑,但地面完全是干的。

Original English

Blake Martin: months prior, I was on a run. And maybe 3 miles in, I feel like my feet are cold. And I look down and I think maybe I stepped in a puddle, but the pavement is dry.

布莱克·马丁: 于是我停下脚步,然后接着跑。大约跑了半英里之后,同样的感觉再次袭来。

Original English

Blake Martin: And so, I stopped and then I ran again. Uh, and maybe half a mile later, the same sensation came back.

安娜·马丁: 咦?你以前有过这种感觉吗?

Original English

Anna Martin: Huh? Had you felt that before?

布莱克·马丁: 从来没有。在那之前不久我刚跑过一场马拉松,所以我对跑步引起的各种肌肉酸痛早已习以为常,但这种冷感完全不同。

Original English

Blake Martin: No, never. I had actually run a marathon not too long before that and and so I was used to other pains when it came to running, but not cold.

安娜·马丁: 明白。

Original English

Anna Martin: Sure.

布莱克·马丁: 随着我继续跑,我开始注意到双脚逐渐蔓延起一种麻木感(Numbness),大约顺着脚踝袜子的边缘往上爬,并且双腿感到异常沉重。

Original English

Blake Martin: And then as I kept running, I kind of noticed some some creeping numbness coming on my feet kind of at the sock line on both of them and my legs felt heavy.

布莱克·马丁: 于是我走走跑跑,回到了家。必须说,起初我根本没当回事,只觉得是跑步姿势不对或者抽筋了。

Original English

Blake Martin: And so I kind of walked a little bit, ran a little bit, made it home. And I should say at the beginning I wasn't concerned. I thought I had a bad run or a cramp.

安娜·马丁: 毕竟你是跑马拉松的人,运动损伤常有发生,状态有起有伏,这很符合常理。

Original English

Anna Martin: I mean, you're a runner that so many injuries happen. Some days are worse than that. That makes sense to me.

布莱克·马丁: 是啊。

Original English

Blake Martin: Yeah.

布莱克·马丁: 后来我去 Google 搜索,网上给出的说法自然是“你的鞋系得太紧了,阻碍了血液循环”。于是我想:“好吧,那我把鞋带系松一点。”但接下来几个月里,只要我跑步,那种麻木感就会再次出现。

Original English

Blake Martin: Yeah. And I I Google it and of course it's like your shoes are too tight, right? You cut off circulation. So I say, "Okay, I'll tie my shoes looser." But then over the coming months as I kept running, it kept happening.

布莱克·马丁: 我当时想,大概是压迫到了哪根神经或者拉伤了哪里。于是我决定去看物理治疗师(Physical Therapist)。我去了一位朋友推荐的理疗师诊所。那是一家专门接待耐力跑运动员的诊所,我想着:“他们肯定天天遇到我这种情况,对吧?”

Original English

Blake Martin: Um I probably just pinched a nerve or I did something whatever. I'm going to go see a physical therapist. I went to his friend of mine. It's a running practice that treats a lot of endurance athletes and I thought, "Oh, they probably see this all the time,

布莱克·马丁: 对吧?

Original English

Blake Martin: right?"

布莱克·马丁: 他为我做了非常详尽的体格检查,工作做得很出色。但在检查结束时,他看似轻描淡写地对我说了一句:“你知道吗,在给你做进一步治疗之前,我希望你能先去看一下神经内科。”

Original English

Blake Martin: And he did a really thorough evaluation. and he did a a a good job and he said at the end very off-handedly said, you know, "Before we do too much work here, I want you to go see a neurologist."

安娜·马丁: 唔。

Original English

Anna Martin: Huh.

布莱克·马丁: 我现在回想起来,他当时肯定是看出了神经系统方面的问题。而我当时依然毫无头绪,仍然固执地以为这只是一种暂时的运动损伤。

Original English

Blake Martin: I think he knew something neurological was going on. I still had no clue. I was still in the world of this is some temporary running injury.

安娜·马丁: 显然,你和奥黛丽是一起经历这一切的。跟我说说你们当时是怎么聊这件事的。

Original English

Anna Martin: Sure. Obviously, you're you and Audrey are sort of going through this together. Tell me a bit how you two were talking about this as you tried to figure this out.

布莱克·马丁: 是的。

Original English

Blake Martin: Yeah.

安娜·马丁: 你们俩之间的交流是什么样的?

Original English

Anna Martin: What were those conversations between you two like?

布莱克·马丁: 说实话,当时我们俩都没怎么太担心。我想我们都默认:我还年轻,平时身体很健康,我们刚刚战胜了不孕不育这个难关。所以我们理所当然地以为,这会和我们以往经历的所有事情一样,只是生活中的一个小插曲,很快就会解决。

Original English

Blake Martin: I think to be honest, neither of us were that concerned. I think we both kind of assumed, you know, um I'm young at the time, I was healthy. We had just conquered the infertility issues. And so we assumed that it would be like anything else we had dealt with that this is something that we can overcome.

安娜·马丁: 理解。后来你就去了神经内科诊所。

Original English

Anna Martin: It makes sense. You went to the neurology clinic.

布莱克·马丁: 对,神经内科诊所。它恰好就在我当时攻读博士学位的同一个医学中心。

Original English

Blake Martin: Yeah, the neurosy clinic. It was at the same medical center where I was getting my PhD at the time.

布莱克·马丁: 那天我直接从我工作的医院大楼走到了门诊楼,身上还穿着医护刷手服(Scrubs),胸前挂着工作证。

Original English

Blake Martin: So I literally walked from the hospital that I was working at to the outpatient clinic building, still in my scrubs, wearing my badge.

安娜·马丁: 哇。

Original English

Anna Martin: Wow.

布莱克·马丁: 回想起来,在潜意识里,我大概是试图向他们传递一种信号:“嘿,我是你们的一员,别担心,我们肯定能搞清楚这只是个小毛病。”

Original English

Blake Martin: which I think subconsciously I was trying to communicate, hey, I'm one of y'all. Don't uh don't worry, we'll figure it out and it'll be fine.

安娜·马丁: 我觉得你穿着刷手服、戴着工牌去赴诊这个细节非常耐人寻味。你是在宣示自己的专业身份。如果说这就像是一层铠甲,会显得过于夸张吗?还是说这种比喻太简单了?

Original English

Anna Martin: Huh. Can I I mean, I think it's so that detail of you wearing your scrubs and your badge to this appointment. You're pointing to your professional identity. Would it be too much to say it was almost like armor or is that too simple?

布莱克·马丁: 没错,那就是一层铠甲,只不过那是一层纸糊的铠甲。

Original English

Blake Martin: Yes, it was armor, but uh it was made of paper.

布莱克·马丁: 我后来才明白,疾病从来不会区分谁是医护提供者,谁是病患。但在那个当下,它确实给予了我一丝安全感。接诊我的是一位住院医师,她用叩诊锤敲击我的膝反射。

Original English

Blake Martin: what I learned later is illness doesn't differentiate between people who provide care and people who receive it. Um but in that moment, it made me feel safe. I had a resident who took a little reflex hammer to my knees

布莱克·马丁: 结果我的其中一条腿猛烈弹起的幅度远超她的预期,她不由得自言自语道:“咦,这有点奇怪。”

Original English

Blake Martin: and one of my knees uh kicked stronger than she was expecting and she kind of said, "Hm, that's odd."

安娜·马丁: 啊。

Original English

Anna Martin: Huh.

布莱克·马丁: 随后她把一位主治医师叫了进来,两人开始低声耳语。那是我第一次心头一紧,意识到:“等等,事情可能并不简单。”

Original English

Blake Martin: And then she brought in one of the attendings and they talked in hush tones and that was the first time that I thought, "Wait a minute, maybe there's something real going on."

多发性硬化症的科普与心理冲击

安娜·马丁: 距那次就诊不到 24 小时之后,我们就看到了你坐在车里等披萨、手机弹出化验通知的那一幕。对于那些不太了解多发性硬化症(MS)表现的人来说,这种疾病未来可能会带来哪些症状?

Original English

Anna Martin: and then less than 24 hours after that we find you in your car, you know, waiting for the pizza getting this notification. For those people who don't know how MS can manifest, what were some of the symptoms that could come down the line?

布莱克·马丁: 好的,我尽量用通俗的方式解释,不过需要先声明一下,具体请咨询专业医疗人员,因为每个患者的病情表现千差万别。多发性硬化症是一种慢性神经系统疾病,其本质是人体的免疫系统发生了紊乱

Original English

Blake Martin: Sure. I will do my best although with a caveat that talk to a medical professional and you know everyone's experience with MS is is different. Um so MS is a chronic and a neurological disease in which the immune system gets confused

布莱克·马丁: 这种紊乱的表现是,免疫系统开始错误地攻击自身的身体组织——这是所有自身免疫性疾病的共同特征。而在 MS 中,它专门攻击包裹在神经纤维外层的保护性髓鞘。

Original English

Blake Martin: and the way that it gets confused is it begins attacking the body which right part of autoimmune diseases but in MS specifically attacks the protective coating of the nerves.

布莱克·马丁: 随着髓鞘受损脱落,神经信号的传导就会受到阻碍或中断。不同患者的症状各不相同:有的人会出现视力模糊,有的人对温度极度敏感,有的人出现行动困难、失去平衡、慢性疼痛、认知功能障碍或极度疲劳。病症的表现因人而异。

Original English

Blake Martin: And as it chips away that protective layer, right, signals can't pass smoothly. And so for some people their symptoms could be blurry vision some people are really sensitive to heat. Some people have difficulty walking. Some people have difficulty balance pain fatigue cognitive difficulties. It can look very different for very for different people.

布莱克·马丁: 当然,这是一种不可逆转的进行性疾病。

Original English

Blake Martin: of course and it's progressive right.

安娜·马丁: 当你坐在车里看着那份检测报告时,你脑海中浮现出的是什么样的画面?

Original English

Anna Martin: What were you imagining for yourself when you were looking at that test result in your car?

布莱克·马丁: 我脑海里浮现的都是最糟糕的极端情况。我立刻联想到轮椅,联想到身体机能彻底衰退,甚至联想到早逝。我几乎是瞬间滑向了灾难化思维。

Original English

Blake Martin: The worst-case scenarios. I went immediately to wheelchairs, total loss of function, early death. I went there immediately.

布莱克·马丁: 我坐在车里,双手死死握着方向盘,浑身止不住地发抖。

Original English

Blake Martin: I sat there in my car holding the steering wheel, just trembling.

安娜·马丁: 你才刚刚得知自己即将成为一名父亲。

Original English

Anna Martin: And you have just learned you're going to be a father.

布莱克·马丁: 距离得知怀孕还不到 24 小时。我前一天还在憧憬着带孩子去露营、在大自然中奔跑嬉戏,而此刻,我的第一个念头却是:“我还能抱起我的孩子吗?如果我的身体彻底垮掉了,我该怎么去照顾他?”

Original English

Blake Martin: Less than 24 hours. The day before, I was imagining taking this kid camping and running around in the woods, and now my thought was, "Am I even going to be able to pick up my kid? How am I going to take care of a child if my body is breaking down?"

安娜·马丁: 你当时是怎么把这个消息告诉奥黛丽的?你拿着披萨回到了家……

Original English

Anna Martin: How did you tell Audrey? You walked back in with the pizza...

布莱克·马丁: 是的,我拿着披萨走进家门。我尽量装作一切正常的样子把披萨放在桌上。奥黛丽一眼就看出我不对劲,她问我:“你怎么了?”我看着她,眼泪直接涌了出来,我说:“我的检查结果出来了,我得了多发性硬化症。”

Original English

Blake Martin: Yeah, I brought the pizza home. I tried to walk in normally and put it on the counter. Audrey looked at me and immediately knew something was wrong. She said, "What happened?" I looked at her and started crying and said, "The results came in. I have MS."

安娜·马丁: 天啊。她的反应是什么?

Original English

Anna Martin: Oh gosh. What was her reaction?

布莱克·马丁: 她愣住了,然后走过来抱住了我。前一天晚上我们在同一个房间里相拥庆祝生命的奇迹,而 24 小时后,我们再次相拥痛哭,但这一次是因为恐惧和绝望。

Original English

Blake Martin: She was stunned, and then she came and held me. The night before, we had held each other in that same apartment celebrating new life, and 24 hours later, we were holding each other crying out of absolute terror.

疾病隐匿性与生活重心的重塑

安娜·马丁: 这两件事在情感上形成了如此剧烈的撕裂与反差。在接下来的几个月里,你们是如何一边迎接新生命,一边面对这个全新且充满未知的疾病诊断的?

Original English

Anna Martin: That is such a profound whiplash of emotions. Over the next few months, how did you two navigate preparing for a baby while simultaneously dealing with a brand new, unpredictable chronic illness?

布莱克·马丁: 那是一段非常奇特的时期。因为在外部看来,多发性硬化症往往是一种“隐形疾病”(Invisible illness)。除非你在经历急性发作期,否则外人看你就像一个完全正常的健康人。

Original English

Blake Martin: It was a very strange time. Because from the outside, MS is often an invisible illness. Unless you are in the middle of a major relapse, to the outside world, you look like a totally healthy person.

布莱克·马丁: 但在内心深处,你时刻在自我监控:“我的脚趾刚才是不是又麻了?我的腿怎么感觉有点沉?我今天的疲惫是正常的累,还是病情恶化了?”

Original English

Blake Martin: But internally, you are constantly monitoring yourself: "Is my toe tingling again? Why does my leg feel heavy? Am I tired because of normal life, or is the disease progressing?"

布莱克·马丁: 与此同时,奥黛丽的肚子一天天大了起来。婴儿床组装好了,婴儿衣服洗干净叠好了。我们生活在两个平行的世界里:一个是充满希望、充满新生命喜悦的明亮世界,另一个则是阴云密布、充满身体衰退恐惧的阴暗世界。

Original English

Blake Martin: Meanwhile, Audrey's belly was growing. The crib was set up, the baby clothes were folded. We were living in two parallel realities: one filled with hope and the joy of new life, and the other shadowed by the fear of physical decline.

安娜·马丁: 这种心理负担对你作为一名心理学家的自我认知产生了怎样的影响?你平时的工作是帮助别人应对心理创伤和焦虑,而现在你必须面对自己的脆弱。

Original English

Anna Martin: How did that psychological burden affect your sense of self as a psychologist? Your job is to help others cope with trauma and anxiety, and now you were forced to face your own vulnerability.

布莱克·马丁: 这彻底打破了我原有的心理防御。在心理学训练中,我们学会了各种应对机制、认知重塑技巧,但当这种不可控的身体危机降临到自己头上时,我发现任何理论都无法消除那种原始的无助感。

Original English

Blake Martin: It completely dismantled my defenses. In psychology training, we learn coping mechanisms and cognitive reframing, but when an uncontrollable physical crisis happens to your own body, no textbook theory can take away that raw sense of helplessness.

布莱克·马丁: 我意识到,我不能再假装自己是一个无坚不摧的治疗者。我首先是一个病人,一个脆弱的丈夫,一个忐忑不安的准爸爸。我必须学会向奥黛丽展现我的脆弱,而不是试图去“解决”或者粉饰所有问题。

Original English

Blake Martin: I realized I couldn't pretend to be an invulnerable clinician. I was a patient first, a vulnerable husband, an anxious expectant father. I had to learn to show my vulnerability to Audrey rather than trying to "fix" or gloss over everything.

孩子的降生与当下的真实力量

安娜·马丁: 后来你们的孩子出生了。能跟我们讲讲孩子出生的那一刻吗?

Original English

Anna Martin: And then your child was born. Can you tell us about the moment your baby arrived?

布莱克·马丁: 我们的儿子叫迈尔斯(Miles)。当他出生的那一刻,我抱起他,看着他那小小的手指和眼睛。所有的焦虑和恐惧在那个瞬间突然全部安静了下来。

Original English

Blake Martin: Our son's name is Miles. The moment he was born, I held him and looked at his tiny fingers and eyes. In that instant, all the noise, the anxiety, and the fear suddenly went completely quiet.

布莱克·马丁: 那种感觉就像是,未来无论会发生什么,此时此刻这个生命就在我怀里。他不需要一个完美的、永远不会生病的超人父亲,他只需要一个全身心爱他的父亲。

Original English

Blake Martin: It felt like, whatever might happen in the future, right here, right now, this life was in my arms. He didn't need a perfect, invincible superman for a father; he just needed a father who loved him completely.

安娜·马丁: 当时迈尔斯多大?随着他逐渐长大,你又是如何与他互动的?

Original English

Anna Martin: How old was Miles at the time, and as he has grown up, how have you adapted your interactions with him?

布莱克·马丁: 他现在已经几岁了,非常活泼好动。虽然因为多发性硬化症,我有时会感到精疲力竭,或者双腿有麻木沉重感,无法像以前那样毫无顾忌地高强度长跑,但我依然能陪他玩耍。

Original English

Blake Martin: He is a few years old now, full of energy. Even though MS means I deal with fatigue and occasional numbness and I can't run marathons the way I used to, I can still play with him.

布莱克·马丁: 我们会在地板上一起拼乐高、读绘本、在后院散步。我开始明白,爱的价值不在于你能完成多么宏大的体能壮举,而在于你是否全神贯注地活在当下的每一个微小陪伴中

Original English

Blake Martin: We build Legos on the floor, read books together, take walks in the backyard. I've learned that the depth of love isn't measured by grand physical feats, but by being fully present in each small moment of connection.

与不确定性共处:重写人生的故事

安娜·马丁: 布莱克,在经历这一切之后,你对“控制感”和“未来的不确定性”有了怎样新的理解?

Original English

Anna Martin: Blake, after going through all of this, how has your relationship with control and the uncertainty of the future evolved?

布莱克·马丁: 以前我总是觉得,我们可以通过努力规划来掌控自己的人生轨迹——考上好大学、读完博士、结婚生子、按部就班地奔向理想的未来。但那短短 24 小时彻底击碎了这种掌控的幻觉。

Original English

Blake Martin: I used to believe that we could control our trajectory through careful planning—get into grad school, earn a PhD, get married, have children, smoothly march toward an idealized future. But those 24 hours completely shattered the illusion of control.

布莱克·马丁: 人生往往充满了同时发生、彼此矛盾的事件:极大的喜悦与深沉的哀伤可能会在同一天降临。我们无法阻止风暴的到来,但我们可以选择如何去面对它。

Original English

Blake Martin: Life is full of contradictory events happening at the exact same time: great joy and profound grief can arrive on the very same day. We cannot stop the storms from coming, but we can choose how we show up for them.

安娜·马丁: 这对于你和奥黛丽的婚姻关系带来了什么样的改变?

Original English

Anna Martin: How has this changed your marriage with Audrey?

布莱克·马丁: 它让我们变得前所未有地坦诚。我们不再回避谈论疾病、衰老或者对未来的担忧。当我们说出“无论健康还是疾病”这句誓言时,它不再只是一句抽象浪漫的台词,而是我们在柴米油盐和医院诊室中共同践行的每日誓约。

Original English

Blake Martin: It has made us more radically honest than ever before. We don't shy away from talking about illness, aging, or future fears. When we said the vow "in sickness and in health," it was no longer an abstract romantic sentiment, but a daily practice in our living room and doctor's offices.

安娜·马丁: 如果现在让你对处于未知恐惧或突遭变故中的听众说一句话,你会对他们说什么?

Original English

Anna Martin: If you could say one thing to listeners who are currently facing the terror of the unknown or sudden life disruptions, what would you tell them?

布莱克·马丁: 我想说,允许自己悲伤,允许自己感到害怕,但不要让对未来可能发生的最坏结果的恐惧,偷走了你今天所拥有的美好。哪怕未来的画卷与你最初设想的截然不同,它依然可以充满意义、充满爱。

Original English

Blake Martin: I would say: allow yourself to grieve and be afraid, but don't let the fear of what might happen tomorrow steal the beauty of what you have today. Even if your future looks completely different from what you originally imagined, it can still be meaningful, beautiful, and full of love.

安娜·马丁: 布莱克,非常感谢你做客《Modern Love》,并如此坦诚地与我们分享你的故事。

Original English

Anna Martin: Blake, thank you so much for being on Modern Love and for sharing your story with such openness and grace.

布莱克·马丁: 非常感谢你,安娜。

Original English

Blake Martin: Thank you so much, Anna.

安娜·马丁: 本期《Modern Love》由安娜·马丁主持,感谢大家的收听。

Original English

Anna Martin: I'm Anna Martin. Thanks for listening.

📌 文中提及的人物和组织

人物: Blake Martin

公司/组织: The New York Times

媒体/书籍: Modern Love

关键字: infertility chronic-illness multiple-sclerosis family-resilience parenting