困在脑海中的声音
我是杰西卡·欧文（Jessica Irwin），我这一生从未开口说过哪怕一个词，甚至没能喊过自己的名字，也没能喊出至关重要的“停下”。但事实是，我内心有太多想说的话，脑海中盘旋着无数机智的反驳。通过在沟通设备上打字，我大约能表达出自己想说内容的25%。而剩下的75%则被困在我的脑海中，唯有我自己能够听见。这种情况每天都在发生。
英文原文
I am Jessica Irwin, and I have never spoken a single word in my life, even to say my name, nor the vital word of "stop." The truth is, I have so much I would like to say, many witty comebacks rolling around inside my head. Through typing on my communication device, I can express about 25 percent of what I want to say. The other 75 percent stays trapped inside my head, for only me to hear. This happens every single day.这是为什么呢？我所患的脑瘫程度，导致我嘴部肌肉完全无法让我做出说话的物理动作。这就是唯一的原因。大家不妨试着慢慢发出字母“J”的声音。当你在发出这个音时，是否感受到了舌头抵在上齿的后方？我根本无法以那种方式移动我的嘴和舌头，这意味着大家能听到我富有智慧的思想与观点的唯一途径，就是由我在沟通设备上为你们敲打出来，其速度堪称“风驰电掣”——每分钟整整七个词。
英文原文
Why is this? I have a level of cerebral palsy that means my mouth muscles simply won't allow me to physically talk. That is the sole reason. Let's focus on slowly sounding out the letter J. Did you feel your tongue on the back of your teeth as you sounded the letter out? I am unable to move my mouth and tongue that way, which means the only way you can hear my intelligent thoughts and ideas is when I type them out for you on my communication device, at the rapid speed of seven words per minute.机械的声音可以输出我说的话，却无法传达我的机智幽默。在紧急情况下，它能迅速表达吗？显然也不能。想象一下，看到你年幼的侄女正伸手要去摸滚烫的炉子。“格雷西，停下！”我无法迅速喊出这些话。我唯一的希望，就是能够设法把她推开——带着满满的爱意。
英文原文
The robotic voice outputs what I'm saying, but it doesn't express my quick wit. Nor can it quickly express something in an emergency? Imagine seeing your little niece about to touch the hot stove. "Gracie, stop." I am unable to quickly say those words. My only hope is that I can manage to push her over -- with love.医院里的恐惧与无法言说的痛苦
许多非言语人士会在医院度过大量时间。我们进入的这个系统在某些方面表现极佳，却未曾受过倾听像我们这类声音的训练。因此，这里成了令人恐惧的地方。许多处于我这种境况的人，在平躺时身体上根本无法使用沟通设备。我们的声音突然间消失了。
英文原文
Many nonverbal people spend a lot of time in hospitals. We enter a system that is brilliant at some things, but untrained in hearing voices like ours. So it becomes a place of fear. Many people in my situation can't physically use our communication devices when we are lying down. Our voices are suddenly not there.想象一下，你躺在病床上，髋部受了伤，身上满是伤口和骨折。一名护士走到你的床前，没有看你的病历记录，直接动手要把你翻身压向受伤的髋部。面对你明知即将来临的剧烈疼痛，你能做些什么来阻止它？什么也做不了。你连一声“停下”都喊不出来。我的意思是，你可以哭出来，但你服用的止痛药物有易怒的副作用。这被护士误解为病人只是在无理取闹、乱发脾气，因为他们不想翻身。而你唯一的选择，就是硬扛着那剧烈的疼痛，像一个非言语人士那样默默忍受。
英文原文
Imagine lying in a hospital bed with an injured hip, with wounds and bone fractures. A nurse comes up to your bed, bypasses your notes and goes to roll you straight onto your injured hip. What can you do to prevent the extreme pain that you know is coming your way? Absolutely nothing. You can't say the single word "stop." I mean, you can start crying, but you are on pain medication that has a side effect of irritability. This is misinterpreted by the nurse as the patient is just fussing because they don't want to roll. And your only option is to brace for the extreme pain and take it like a nonverbal person.简单而救命的沟通方法
这不是假设。这曾是我经历过的可怕现实。正因如此，我正致力于将沟通培训引入医院。我不希望其他病人经受不必要的痛苦。而最棒的一点在于——这个问题是可以解决的。所需要的仅仅是掌握一件简单的事：假设病人具有正常的智力，询问是非题，并请他们……向上看代表“是”，向下看代表“否”。
英文原文
This is not hypothetical. It has been my horrifying reality. This is why I'm bringing communication training into hospitals. I don't want other patients to experience unnecessary pain. And here's the brilliant thing -- this problem is solvable. All it takes is knowing one simple thing. Assume the patient is intelligent, ask yes and no questions, and ask them to ... look up for "yes" and look down for "no."我们一起来试一试。如果你赞同并跟上了我，请向上看表示“是”。现在，向下看表示“否”。太棒了。就这样，在没有开口说一个字的情况下，我们已经完成了一次对话。这种方式同样适用于复杂的场景，比如“你痛吗？”、“需要我叫人来吗？”、“我可以检查一下你感觉疼的位置吗？”、“我能逐个念出字母，好让你在念到正确的字母时向上看，以此拼出单词吗？”四个简单的步骤，却能够拯救一条生命。
英文原文
Let's try it together. If you're with me, look up for "yes." Now look down for "no." Awesome. Just like that, without a single spoken word, we've had a conversation. This also works for complex scenarios like "Are you in pain?" "Do you want me to call someone?" "Can I examine where you are hurting?" "Can I run through the alphabet so you can spell out a word by looking up [at] the correct letter?” Four simple steps. But they can save a life.有时，人们会要求我握一下他们的手来表示“是”。在我患有的这类脑瘫中，我有着很强的不自主肌肉抓握反应，所以我的手部肌肉会开始不自主地紧握，就像捕熊夹一样。这时你会想：“她为什么还不松开我的手？”而我心里则在想：“糟了。我的手松不开了。我卡住了，而他们根本不知道。”有时候这真的让人哭笑不得。
英文原文
Sometimes, people ask me to squeeze their hand to signal "yes." In my type of cerebral palsy, I have a high involuntary muscle grip, so my hand muscles will begin to involuntarily squeeze like a bear trap. You will be thinking, "Why isn't she letting go of my hand?" And I will be thinking, "Bollocks. My hand won't let go. I'm stuck and they don't know." It’s hilarious sometimes.打破偏见：平视非言语群体
事情的关键在于：脑瘫是一种脑损伤，而当人们听到“脑损伤”这几个字时，他们往往会不假思索地联想到智力受损。但是，当一个人患有脑损伤时，并不意味着他们整个大脑就应该被全盘忽视。我的病症影响的是运动，而不是智力。处于非言语状态并不意味着我们没有观点和知识可以分享。
英文原文
Here’s the thing: cerebral palsy is a brain injury, and when people hear the words "brain damage," they automatically jump to intellectual impairment. But when somebody has brain damage, it should not mean their entire brain should be disregarded. My case affects movement, not intelligence. Being nonverbal doesn't mean we don't have opinions and knowledge to share.我们经常被别人用居高临下的高声调对话，或是被摸摸脑袋，只因为大家根本不知道该如何与我们接触。所以，这里有一个建议：只需以一句“你好，我叫……”开启对话，然后让交流自然而然地发展下去。完全没有必要提高音量或者放慢语速说话。请像对待此刻坐在你身旁的普通人一样与我们交谈。你能想象摸摸他们头的场景吗？那得有多诡异？（笑声）而那些摸人头的人，很可能正是以为我是行为异常的那类人。（笑声）
英文原文
We often get loudly spoken down to and patted on the head, because people just don't know how to approach us. So here's a tip. Simply start a conversation with "Hi, my name is ..." and just let the conversation grow from there. There's no need to talk loudly or slowly. Speak to us like you would the person sitting next to you right now. Can you imagine patting them on the head? How weird would that be? (Laughter) And these head-patters are likely the people [who] assume I’m the one with unusual behaviors. (Laughter)请试着与我们交流
请观察我们的面部表情和眼神动作。试着用幽默来探寻我们是否会笑。如果我们笑了，这就证明我们能够听见并理解你说的话。观察我们是否正在沟通设备上打字。留心看看我们面前是否有一块数字屏幕。你拥有让某个人重新获得发声权利的力量，这是一件极其美好的事。因此，无论你是一名教授、医生、护士还是未来的朋友，都请尝试去沟通。请记住，我远比我展现出的外表要丰富得多。我的名字是杰西卡·欧文。我是一名摄影师、艺术家、作家、主旨演讲者，以及一个活生生的人。我和你们没有任何不同。（欢呼声与掌声）